{"id":16824,"date":"2024-05-27T05:17:05","date_gmt":"2024-05-27T03:17:05","guid":{"rendered":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/?p=16824"},"modified":"2024-06-03T17:18:44","modified_gmt":"2024-06-03T15:18:44","slug":"raconter-lepilepsie-episode-3","status":"publish","type":"post","link":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/raconter-lepilepsie-episode-3\/","title":{"rendered":"Raconter l\u2019\u00e9pilepsie : \u00e9pisode 3"},"content":{"rendered":"

[et_pb_section bb_built=\u00a0\u00bb1″ next_background_color=\u00a0\u00bb#000000″ inner_width=\u00a0\u00bbauto\u00a0\u00bb inner_max_width=\u00a0\u00bbnone\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb3.22.1″][et_pb_column type=\u00a0\u00bb3_4″][et_pb_text admin_label=\u00a0\u00bbIntro\u00a0\u00bb _builder_version=\u00a0\u00bb3.22.1″ module_id=\u00a0\u00bbintro\u00a0\u00bb text_text_shadow_horizontal_length=\u00a0\u00bbtext_text_shadow_style,%91object Object%93″ text_text_shadow_vertical_length=\u00a0\u00bbtext_text_shadow_style,%91object Object%93″ text_text_shadow_blur_strength=\u00a0\u00bbtext_text_shadow_style,%91object Object%93″ link_text_shadow_horizontal_length=\u00a0\u00bblink_text_shadow_style,%91object Object%93″ link_text_shadow_vertical_length=\u00a0\u00bblink_text_shadow_style,%91object Object%93″ link_text_shadow_blur_strength=\u00a0\u00bblink_text_shadow_style,%91object Object%93″ ul_text_shadow_horizontal_length=\u00a0\u00bbul_text_shadow_style,%91object Object%93″ ul_text_shadow_vertical_length=\u00a0\u00bbul_text_shadow_style,%91object Object%93″ ul_text_shadow_blur_strength=\u00a0\u00bbul_text_shadow_style,%91object Object%93″ ol_text_shadow_horizontal_length=\u00a0\u00bbol_text_shadow_style,%91object Object%93″ ol_text_shadow_vertical_length=\u00a0\u00bbol_text_shadow_style,%91object Object%93″ ol_text_shadow_blur_strength=\u00a0\u00bbol_text_shadow_style,%91object Object%93″ quote_text_shadow_horizontal_length=\u00a0\u00bbquote_text_shadow_style,%91object Object%93″ quote_text_shadow_vertical_length=\u00a0\u00bbquote_text_shadow_style,%91object Object%93″ quote_text_shadow_blur_strength=\u00a0\u00bbquote_text_shadow_style,%91object Object%93″ header_text_shadow_horizontal_length=\u00a0\u00bbheader_text_shadow_style,%91object Object%93″ header_text_shadow_vertical_length=\u00a0\u00bbheader_text_shadow_style,%91object Object%93″ header_text_shadow_blur_strength=\u00a0\u00bbheader_text_shadow_style,%91object Object%93″ header_2_text_shadow_horizontal_length=\u00a0\u00bbheader_2_text_shadow_style,%91object Object%93″ header_2_text_shadow_vertical_length=\u00a0\u00bbheader_2_text_shadow_style,%91object Object%93″ header_2_text_shadow_blur_strength=\u00a0\u00bbheader_2_text_shadow_style,%91object Object%93″ header_3_text_shadow_horizontal_length=\u00a0\u00bbheader_3_text_shadow_style,%91object Object%93″ header_3_text_shadow_vertical_length=\u00a0\u00bbheader_3_text_shadow_style,%91object Object%93″ header_3_text_shadow_blur_strength=\u00a0\u00bbheader_3_text_shadow_style,%91object Object%93″ header_4_text_shadow_horizontal_length=\u00a0\u00bbheader_4_text_shadow_style,%91object Object%93″ header_4_text_shadow_vertical_length=\u00a0\u00bbheader_4_text_shadow_style,%91object Object%93″ header_4_text_shadow_blur_strength=\u00a0\u00bbheader_4_text_shadow_style,%91object Object%93″ header_5_text_shadow_horizontal_length=\u00a0\u00bbheader_5_text_shadow_style,%91object Object%93″ header_5_text_shadow_vertical_length=\u00a0\u00bbheader_5_text_shadow_style,%91object Object%93″ header_5_text_shadow_blur_strength=\u00a0\u00bbheader_5_text_shadow_style,%91object Object%93″ header_6_text_shadow_horizontal_length=\u00a0\u00bbheader_6_text_shadow_style,%91object Object%93″ header_6_text_shadow_vertical_length=\u00a0\u00bbheader_6_text_shadow_style,%91object Object%93″ header_6_text_shadow_blur_strength=\u00a0\u00bbheader_6_text_shadow_style,%91object Object%93″ z_index_tablet=\u00a0\u00bb500″]<\/p>\n

Les personnes malades chroniques peuvent \u00eatre incit\u00e9es par le corps m\u00e9dical, leur entourage ou plus largement la soci\u00e9t\u00e9 \u00e0 vivre le plus normalement possible malgr\u00e9 la maladie, tout en suivant des prescriptions m\u00e9dicales et d\u2019hygi\u00e8ne de vie parfois strictes et contraignantes. En retour, un d\u00e9sir de \u201cvie normale\u201d est parfois exprim\u00e9 par les personnes elles-m\u00eames, o\u00f9 la normalit\u00e9 peut renvoyer \u00e0 diff\u00e9rentes choses: une vie \u201ccomme tout le monde\u201d, une vie \u201ccomme avant\u201d, mais aussi une vie dont on dessine autant que possible les contours, en tenant compte des sp\u00e9cificit\u00e9s de chacun.<\/p>\n

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Raconter l\u2019\u00e9pilepsie<\/em> \u2013 un podcast en humanit\u00e9s m\u00e9dicales <\/strong><\/h4>\n

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Illustration : Line Hachem\u00a0<\/p>\n<\/div>\n<\/div>\n<\/div>\n

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Dans ce troisi\u00e8me \u00e9pisode, l\u2019\u00e9quipe de \u201cRaconter l\u2019\u00e9pilepsie\u201d donne la parole \u00e0 son ami Al Frobert, lui-m\u00eame atteint d\u2019\u00e9pilepsie, pour comprendre sa recherche de mieux-\u00eatre et d\u2019\u00e9quilibre dans sa gestion de la maladie. Agathe Camus, chercheuse en philosophie de la m\u00e9decine au sein du projet de recherche EPIPHINORE, questionne quant \u00e0 elle le d\u00e9sir de \u201cvie normale\u201d et ses ambivalences.Ensemble, ils nous montrent comment l\u2019association des savoirs des malades et des humanit\u00e9s m\u00e9dicales peut \u201ccombler les trous\u201d de la prise en charge m\u00e9dicale de l\u2019\u00e9pilepsie et \u201couvrir de nouvelles possibilit\u00e9s\u201d pour les malades chroniques.<\/p>\n

> D\u00e9couvrir le troisi\u00e8me \u00e9pisode<\/a> <\/h3>\n

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Co-\u00e9crit par Claire Jeantils, Clara Matet, Agathe Camus<\/p>\n

Montage et r\u00e9alisation : Clara Matet<\/p>\n

Traduction litt\u00e9raire : Claire Jeantils\u00a0<\/p>\n

Traduction interview : Clara Matet\u00a0<\/p>\n

Illustration : Line Hachem\u00a0<\/p>\n

Composition originale g\u00e9n\u00e9rique : Anna Cordonnier\u00a0<\/p>\n

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\u00c0<\/span> lire aussi<\/h2>\n

[\/et_pb_text][et_pb_blog _builder_version=\u00a0\u00bb3.21″ posts_number=\u00a0\u00bb4″ include_categories=\u00a0\u00bb13″ show_author=\u00a0\u00bboff\u00a0\u00bb show_date=\u00a0\u00bboff\u00a0\u00bb show_pagination=\u00a0\u00bboff\u00a0\u00bb border_width_bottom_fullwidth=\u00a0\u00bb1px\u00a0\u00bb border_color_bottom_fullwidth=\u00a0\u00bbrgba(51,51,51,0.18)\u00a0\u00bb custom_padding=\u00a0\u00bb||50px|\u00a0\u00bb module_id=\u00a0\u00bbpage_type_blog\u00a0\u00bb header_level=\u00a0\u00bbh4″ \/][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Les personnes malades chroniques peuvent \u00eatre incit\u00e9es par le corps m\u00e9dical, leur entourage ou plus largement la soci\u00e9t\u00e9 \u00e0 vivre le plus normalement possible malgr\u00e9 la maladie, tout en suivant des prescriptions m\u00e9dicales et d\u2019hygi\u00e8ne de vie parfois strictes et contraignantes. En retour, un d\u00e9sir de \u201cvie normale\u201d est parfois exprim\u00e9 par les personnes elles-m\u00eames,… Lire la suite Raconter l\u2019\u00e9pilepsie : \u00e9pisode 3<\/span><\/a><\/p>\n","protected":false},"author":483,"featured_media":16616,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[89,21,100,94,40],"tags":[],"class_list":["post-16824","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-appels-a-projets","category-evenements","category-projets","category-projets-finances-par-linstitut","category-publication"],"_links":{"self":[{"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/posts\/16824","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/users\/483"}],"replies":[{"embeddable":true,"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/comments?post=16824"}],"version-history":[{"count":3,"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/posts\/16824\/revisions"}],"predecessor-version":[{"id":16831,"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/posts\/16824\/revisions\/16831"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/media\/16616"}],"wp:attachment":[{"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/media?parent=16824"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/categories?post=16824"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/wordpress-test.app.u-pariscite.fr\/la-personne-en-medecine\/wp-json\/wp\/v2\/tags?post=16824"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}